Notice Board

ALL DFNZ SOLUTION PROVIDERS & MEMBERS - IS YOUR LOCAL SCHOOL PARTICIPATING IN OUR TEACHER SURVEY?

The Dyslexia Foundation's ground-breaking online teacher survey is going live on Thursday and this is the last chance for teachers at your local school to sign up and have their say on dyslexia.

It's easy for teachers to register. All they need to do is email info@dfnz.org.nz and we'll send them the survey link on Thursday, 15 May.

PLUS we're giving the first 350 teachers who complete the survey a copy of Taare Zameen Par - a delightful movie about a young boy's struggle with dyslexia and the teacher who turned his world around. It's a perfect classroom and staffroom discussion starter.

Don't delay, encourage your local teachers to register today, and together we can help the 70,000 New Zealand children with this alternative way of thinking.

NEWS FLASH - SCHOOL PRIZE POOL HAS INCREASED TO $14,000!!
The Cookie Munchers Charitable Trust prize pool of $10,000 has just been expanded to $14,000 thanks to generous donations from the Altrusa Group and Rotary.

This means by participating in DAW, schools now have seven chances to win a $2,000 cash donation to apply to any dyslexia resource purchase or initiative. So encourage your local school to get involved in DAW and go into the draw!

Your local school should have received a Dyslexia Resource Kit last week. If they have not received it please encourage them to email us on info@dfnz.org.nz so we can send another - while stocks last!!

FULL DETAILS about Dyslexia Awareness Week are available on our website www.dfnz.org.nz

Chateau on the Park Hotel, Christchurch 3rd to 5th Oct 2008. See website for details

Would you like to be part of a study that is looking to develop a diet to help individuals based on their genetic make- up?

We are presently recruiting people with Crohn’s Disease (active or in remission) to fill out a diet and a risk-factor questionnaire and provide a blood sample with the aim of linking the way the variations in our genes affect the different foods we can tolerate.

We also need people with no history of bowel disease to fill out a diet and a risk- factor questionnaire and provide a blood sample these samples with acts as controls in our study.

Anyone interested in participating in the research should contact Professor Ferguson on 06 373 7599 ext 86372

In association with: Professor Lynette Ferguson, Department of Nutrition; Crop and Food Research; HortResearch; AgResearch Limited.

A small group of parents of children with Septo- Optic Dysplasia and associated Hypo Pituitarism would like to make contact with any one who as a child with the same condition, currently receiving Growth Hormone Replacement Therapy (alongside one other type of hormone replacement therapy)

We would also like to contact anyone who has the condition and has previously received GHT but is now off it. If there are any adults with GH deficiency, whether you received it as a child or not, we would love to hear from you too.

Please email Jude - judycraig@xtra.co.nz, or phone 09 479 1197 or Mel - bearandmel@xtra.co.nz or phone 09 489 7306. You can write to us at 83 Churchill Road, Murray's Bay, Auckland (please include your contact phone numbers so we can contact you)

Hi everyone, we have an 11 year old son named Denim who has Dermatomyositis. We are trying to set up a support group for Denim and for families who have loved ones like Denim who suffer from this disease. If you would like to be a part of this support group please email me on the address below and let us know.

Rangi, Stella and Denim

r.h.m.williams@ucol.ac.nz

Telephone: 06 348 0555
Rangi Williams

Gastric Reflux Support Network (NZ) & (IGRS)

Noticeboard
If you have a notice that will benefit the Parent to Parent Community, feel free to submit your message by completing the noticeboard form (see the link below "NoticeBoard Request") Once completed, the notice will be sent to Parent to Parent staff for placement. This notice may take two days to appear on the website so please give us plenty of notice. Also, Parent to Parent staff reserve the right to modify or edit your notice as they see necessary (if the notice is modified, you will be contacted.) NoticeBoard Request

WEST AUCKLAND YOUTH GROUP I am planning a group for young people with disabilities who have left school and don't have full/any commitments with work or study and would enjoy some activities and social contact with others. 16-25 age group or a little over. Based in Henderson West Auckland. If you are interested please contact Julie on ph 09 837 0581 (evenings) or email youthtogether@live.com

ALL DFNZ SOLUTION PROVIDERS & MEMBERS - IS YOUR LOCAL SCHOOL PARTICIPATING IN OUR TEACHER SURVEY? The Dyslexia Foundation's ground-breaking online teacher survey is going live on Thursday and this is the last chance for teachers at your local school to sign up and have their say on dyslexia. It's easy for teachers to register. All they need to do is email info@dfnz.org.nz and we'll send them the survey link on Thursday, 15 May. PLUS we're giving the first 350 teachers who complete the survey a copy of Taare Zameen Par - a delightful movie about a young boy's struggle with dyslexia and the teacher who turned his world around. It's a perfect classroom and staffroom discussion starter. Don't delay, encourage your local teachers to register today, and together we can help the 70,000 New Zealand children with this alternative way of thinking. NEWS FLASH - SCHOOL PRIZE POOL HAS INCREASED TO $14,000!! The Cookie Munchers Charitable Trust prize pool of $10,000 has just been expanded to $14,000 thanks to generous donations from the Altrusa Group and Rotary. This means by participating in DAW, schools now have seven chances to win a $2,000 cash donation to apply to any dyslexia resource purchase or initiative. So encourage your local school to get involved in DAW and go into the draw! Your local school should have received a Dyslexia Resource Kit last week. If they have not received it please encourage them to email us on info@dfnz.org.nz so we can send another - while stocks last!! With kind regards, The Trustees DYSLEXIA FOUNDATION OF NZ FULL DETAILS about Dyslexia Awareness Week are available on our website www.dfnz.org.nz CHARGE Syndrome Conference Chateau on the Park Hotel, Christchurch 3rd to 5th Oct 2008. See website for details www.chargesyndrome.org.nz DO YOU HAVE CROHN’S DISEASE? Would you like to be part of a study that is looking to develop a diet to help individuals based on their genetic make- up? We are presently recruiting people with Crohn’s Disease (active or in remission) to fill out a diet and a risk-factor questionnaire and provide a blood sample with the aim of linking the way the variations in our genes affect the different foods we can tolerate. We also need people with no history of bowel disease to fill out a diet and a risk- factor questionnaire and provide a blood sample these samples with acts as controls in our study. Anyone interested in participating in the research should contact Professor Ferguson on 06 373 7599 ext 86372 In association with: Professor Lynette Ferguson, Department of Nutrition; Crop and Food Research; HortResearch; AgResearch Limited. A small group of parents of children with Septo- Optic Dysplasia and associated Hypo Pituitarism would like to make contact with any one who as a child with the same condition, currently receiving Growth Hormone Replacement Therapy (alongside one other type of hormone replacement therapy) We would also like to contact anyone who has the condition and has previously received GHT but is now off it. If there are any adults with GH deficiency, whether you received it as a child or not, we would love to hear from you too. Please email Jude - judycraig@xtra.co.nz, or phone 09 479 1197 or Mel - bearandmel@xtra.co.nz or phone 09 489 7306. You can write to us at 83 Churchill Road, Murray's Bay, Auckland (please include your contact phone numbers so we can contact you) Hi everyone, we have an 11 year old son named Denim who has Dermatomyositis. We are trying to set up a support group for Denim and for families who have loved ones like Denim who suffer from this disease. If you would like to be a part of this support group please email me on the address below and let us know. Rangi, Stella and Denim r.h.m.williams@ucol.ac.nz Telephone: 06 348 0555 Rangi Williams Gastric Reflux Support Network (NZ) & (IGRS) Address: PO Box 14065, Enderly, Hamilton Telephone: (07) 855 9350 www.cryingoverspiltmilk.co.nz GRSNNZ would like to invite families coping with Gastric Reflux to come to our coffee group which is held fortnightly on Thursdays 10am, in summer we will occasionally go out walking. If you are outside Hamilton area please contact Jennifer at the above phone number and we will put you in contact with someone in your area. Look forward to seeing you.
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