If
you have a notice that will benefit the Parent to Parent Community, feel
free to submit your message by completing the noticeboard form (see the
link below "NoticeBoard Request")
Once completed, the notice will be sent to Parent to Parent staff for
placement. This notice may take two days to appear on the website so please
give us plenty of notice. Also, Parent to Parent staff reserve the right
to modify or edit your notice as they see necessary (if the notice is
modified, you will be contacted.)
Parent to Parent’s Review of Special Education submission
Parent to Parent’s Review of Special Education submission for more info Click Here
Waikato
DHB - Youth transition from Paediatric to Adult Care Project
As
the project manager for this Waikato DHB project Andrea Mockford, who
is the nurse co-ordinator for child and youth health is keen to ensure
that local young people/rangatahi and parents/caregivers are aware of
the project and its progress.
The aim is to develop a youth health care transitional model that will prepare and support young people/rangatahi (aged 12 to 19 years) with long term health conditions in their ‘transition’ from our paediatric to adult health care services at Waikato hospital and the local rural hospitals).
Developing
a model for youth transition is about providing a planned, coordinated
and individualised approach to their healthcare that supports young people
and their parents/caregivers. In late 2009 a project group was formed
with representatives from the paediatric and adult care areas, the child
development centre, Te Puna Oranga (Maori Health Service), primary care,
true colours, rainbow place, the parent to parent organisation and the
Waikato palliative care strategy group. This project group provide the
guidance and expertise towards the
youth transition model development.
“The need to develop a model or approach to youth transitional health care for the DHB has been well recognised. It is really great to see this moving ahead” says Andrea. A background report has now been completed, including a literature review, with an overview of current service delivery and a look at some of the national and international youth health transition models out there.
The project group have been developing best practice standard guideline for youth transitional health care for Waikato DHB health services to use. Consultation with local young people, parents and caregivers and staff (across sectors) involved with /affected by transitional care is really important to the guideline development process.
The DHB guideline needs to be completed by the end June. It is anticipated that there will be then be the further development of youth transition resources i.e. checklists, transitional plans, and web-based information, to support the transitional care of young people.
Seeking
feedback – consultation in May
The opportunity to survey Waikato based parents/caregivers and young people
to have a say around the draft best practice standards is planned for
May. Andrea is keen for your input and invites local parent/caregivers
and any young person to contact her for either further information and/or
to be personally sent the survey. I can be contacted either on mobile
021 359 580 or via email mockfora@waikatodhb.govt.nz
Kindest regards
Andrea Mockford
Nurse co-ordinator: child & youth health
Waikato DHB
Quality of Life for Caregivers of a child aged 6-16 years with Autistic Spectrum Disorder and/or an Intellectual Disability: A comparative study
My name is Natasha Browne and I am currently completing my Master’s Thesis in Psychology. My supervisor on this project is Ian Evans, Professor, Massey University.
My thesis project is aimed at identifying the difference in quality of life for caregivers of children with Autistic Spectrum Disorder and/or an Intellectual Disability when compared to caregivers of children without these conditions. This study hopes to highlight not only areas that need addressing, but also to highlight the positive aspects of the caregiving role. We are not assuming that quality of life is in any way lessened by having a child with a disability to care for—in fact many families report a whole host of positive outcomes. However we are especially interested in your feelings about the kinds of supports and service you receive. Finding out more about how support services might be improved is one of the goals of this research project.
You are invited to view the online information sheet and questionnaire via the following web link:
http://psych-research.massey.ac.nz/browne/index.htm
or alternatively are invited to call or text message 022 621 0563 and leave a message indicating your name and the address where you wish the information sheet and questionnaire to be posted. Paper copies of the questionnaire will include postage reply envelopes for your convenience. These details will also be listed on various support group webpages and newsletters for easy access.
This project has been reviewed and approved by the Massey University Human Ethics Committee: Southern A, Application 09/49. If you have any concerns about the ethics of this research, please contact Professor Julie Boddy, Chair, Massey University Human Ethics Committee: Southern A telephone 06 350 5799 x 2541, email humanethicsoutha@massey.ac.nz
I would greatly appreciate your participation in this study. Thank you for considering this request.
SCHOOL
OF PSYCHOLOGY
Te Kura Hinengaro Tangata
Private Box 756
Wellington 6140
New Zealand
T 64 4 801 5799 extn 62125
F 64 4 801 4984
www.massey.ac.nz
http://psychology.massey.ac.nz
I would like to thank you for voting for Parent to Parent on the Sovereign Sunshine website.
Because of all your fantastic support we will be the recipients of $16,095.44 for our SibSupport programme. So thank you, thank you, thank you!
It was exciting and a bit nerve wracking to watch at times, particularly when we were behind. But thanks to all of your votes and my over abundant emails we eventually surged ahead and won!
The other benefit from our presence on the Sovereign Sunshine website is that there has been an increased awareness of Parent to Parent in the community and now more families than ever know to contact us for support.
So thank you once again. Your support has made a real difference too many families in New Zealand who are raising children with disabilities, health impairments and special needs.
I would like
to wish you all a Merry Christmas and Happy New Year.
Roni Jacobs
Office Administrator
National
Office
- PO Box
234 Waikato Mail Centre Hamilton 3240 Ph: (07) 853 8491 roni@parent2parent.org.nz
Title: Hands on Verbal Behaviour Workshop
NETwork Interventions will bring you the most recent advances in practical and fun ways. After three days of hands on teaching, you will be ready to implement new and successful programmes for your children.
Text: Emerge Supported Employment Trust has been running a successful Transition program since 2001.
We offer a Transition Programme to students in central Wellington and are funded by the Ministry of Social Development to work with students aged 16-21yrs who are ORRS funded and are in their last year of school. Transition might include; initiating community involvement, furthering employment or education skills and linking students into recreational interests.
We are constantly seeking ideas about how we can meet the needs of students who do not meet that funding criteria but who do need support during the transition process. If you would like to discuss this or know someone who may benefit from our services, please contact us.
COSPRO is a new non-profit support programme for children aged 5 to 16 who are experiencing social or physical challenges as a result of obesity.
The programme aims to help overweight children develop self-confidence and physical fitness by supporting them to become involved in community activities which they are comfortable doing and can confidently perform.
A Support Group is also held once a month.
COSPRO is currently operating in Wellington, Porirua, Kapiti, and the Hutt Valley.
COSPRO was developed by Chris Lakomy, a residential Youth Worker with over 5 years' experience supporting children and teens with social and physical challenges in residential and community organisations.
- Visit www.cospro.webs.com for more information.
I am planning a group for young people with disabilities who have left school and don't have full/any commitments with work or study and would enjoy some activities and social contact with others. 16-25 age group or a little over. Based in Henderson West Auckland.
- If you are interested please contact Julie on ph 09 837 0581 (evenings) or email youthtogether@live.com
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