Links and Useful Sites

Links and Useful Sites
If you would like to add your organisations site to our links page, fill in our enquiry form by clicking here
www.acousticneuroma.org.nz	The Acoustic Neuroma Association of NZ is a mutual-aid group, organised and administered by ex-patients and their families.
www.adhd.org.nz	Attention Deficit Hyperactivity Disorder
www.ageconcern.org.nz	Age Concern New Zealand is a not-for-profit, charitable organisation, dedicated to promoting the quality of life and well-being of older people, advocating positive healthy ageing for people of all ages.
www.allergy.org.nz	Allergy New Zealand's goal is to provide the quality of life of people with allergies, especially children and their families, through support, education and information.
www.altogetherautism.org.nz	National information & advisory service for people with Autism Spectrum Disorder and their families/whanau.
www.agsa-geneticsupport.org.au	The Association of Genetic Support of Australasia facilitates support for those affected directly or indirectly by genetic conditions.
www.arthritis.org.nz	Arthritis New Zealand is the national voluntary organisation in New Zealand, which represents the interests of those with arthritis.
www.astechnz.com	Astech provide Occupational Therapy, Speech Language Therapy and Physiotherapy services for children with both physical and learning disabilities and also specialise in assistive technology
www.autismnz.org.nz	Autism New Zealand Inc. provides support, training, advocacy, resources and information on autism spectrum disorders including Asperger Syndrome. Our members include those who have these conditions, their family/whanau, caregivers and professionals working with them.
www.babywebnz.org.nz	"Let me a Mother, Midwife and Childbirth Educator link you to web sites related to pregnancy, childbirth, babies and parenting."
www.balance.org.nz	BALANCE provides support, education and advocacy to anyone affected by bipolar disorder (manic depression) in New Zealand. BALANCE does this by encouraging and fostering links between bipolar support groups; by promoting training with an emphasis on recovery principles; and by supporting further research on bipolar disorder in New Zealand.
www.barnardos.org.nz	Barnardos works within the community to provide a range of care, education and support services for children and their families. As a not-for-profit organisation Barnardos is dedicated to ensuring all New Zealand children and families have access to services, which are appropriate to their needs
www.brain-injury-nz.org	The Brain Injury Association New Zealand provides information, advocacy and support to people with brain injury and their families/whanau.
www.cafamily.org.uk	Contact a Family is a UK based group, helping families who care for children with any disability or special need.
www.cancernz.org.nz	The Cancer Society's mission is to minimise the impact of cancer on our community. Work focuses on evidence-based health promotion and education, research, advocacy, information and support to provide quality of life for people affected by cancer.
www.carers.net.nz	Help for New Zealand's 750 000+ Family Carers, Whanau and Friends.
www.ccsdisabilityaction.org.nz	CCS Disability Action provides services and support for all people with disabilities. It works at the forefront of social change to ensure the rights of disabled people are acknowledged and that disabled people are included in all aspects of life.
www.ccsg.org.nz	The Crohn's & Colitis Support Group (CCSG) Inc . is the largest group of its type in New Zealand. It is a voluntary non-profit organisation whose aims are to provide support, advice and information to interested individuals and people who have Crohn's disease or ulcerative colitis, and educational material to medical professionals and organisations within New Zealand. Our range of services includes a local newsletter (4 per year), and a national newsletter (3 per year), a specialist library, 10 information leaflets, and a Community Contact Service. The CCSG provides patient education material to hospitals, specialists, general practitioners and other professional institutions as well as supplying this material to the other 11 CCSGs around New Zealand.
www.cfnz.org.nz	The Cystic Fibrosis Association is an incorporated society providing membership for regional groups, businesses and individuals who wish to work together in support of people with cystic fibrosis and their families
www.childcancer.org.nz	The Child Cancer Foundation is passionately dedicated to helping children, young people and their families who are living with cancer to make it through their journey in the most positive way possible. We also support the health professionals who care for them and search for a cure for cancer.
www.chromodisorder.org	Chromosome Deletion Outreach Inc: This group is based in the United States and has members from 33 countries registered.
www.chromosome18.org	Is the centre for research and support for genetic conditions found on the 18th chromosome. It has an Australasian division. This organisation can link families with each other from within NZ and internationally.
www.cleft.org.nz	Cleft Lip and Palate Support Group. Our Support Group is a voluntary organisation, of like-minded parents drawn together because of our beautiful cleft children. We aim, to make it easier for families, children and the wider community to care for and support our cleft children. Our end goal is to achieve the best possible outcomes for cleft people in New Zealand. We do this, together with the Medical Professionals who provide specialist care for our cleft children.
www.climb.org.uk	Climb National Information and Advice Centre for Metabolic Diseases.
www.cpsoc.org.nz	This website aims to provide you with information about Cerebral Palsy as well they are committed to educating people with disabilities and their families, carers and other support workers to achieve and believe in their own capabilities.
www.cryingoverspiltmilk.co.nz	GRSNNZ - "Supporting families coping with Gastric Reflux"
www.deaf.co.nz	Information about support, education, sign language and the deaf association online community.
www.dpa.org.nz	DPA is the national assembly of people with disabilities. It is an umbrella organisation for the full range of people with disabilities in New Zealand. DPA has some 1,200 individual members who either have disabilities themselves, or are the parent, or guardian of a person with a disability and some 300 corporate members who represent or deliver services to people with disabilities. DPA advocates across the range of age and impairment at a societal level and this issue-level advocacy is grounded in human rights.
www.dyslexiafoundation.org.nz	The Foundation provides essential information and support to parents, adults, schools and others working in the dyslexia field.
www.dyspraxia.org.nz	New Zealand Dyspraxia Support Group: Based in Christchurch, this group supports families who have a child with Dyspraxia (also knows as Developmental Coordination Disorder and the Clumsy child Syndrome.
www.edcentre.org.nz	EdCentre is your online gateway to information about New Zealand education. It provides access to educational services and advice for organisations and people at all stages of their lives
www.edusearch.co.nz	An educational website that has a database that lists every pre-school to adult educational facility in New Zealand. It includes reference to and articles about the many different types of education that are available, and also encompasses many other aspects of New Zealand education
www.enable.co.nz	Enable New Zealand is a multi-service organisation working to assist disabled people and their families/whanau/hapu, employers, health professionals and disability support organisations
www.eparent.com	USA based Exceptional Parent magazine provides information and support for the Special Needs Community
www.epilepsy.org.nz	The website for Epilepsy New Zealand
www.ero.govt.nz	The Education Review Office (ERO) is a government department whose purpose is to evaluate and report publicly on the education and care of students in schools and early childhood services
www.equestriantherapycentre.co.nz	Riding therapy is an incredible way to improve and enhance one’s life. The Tauranga Riding for the Disabled specialise in equestrian therapy for the wellbeing of people in our community.
www.faircentre.org.nz	At the Family Advocacy and Information Resource (FAIR) Centre, we deliver reliable and accessible information to families, whanau, agencies and professionals as they care for and support their children. Our national freephone service can help answer your questions on accessing local community services and professional help, benefit and financial entitlements, family legal issues and appealing decisions and making complaints. We also provide plain language publications on a variety of child and family issues. We can help you to unravel the issues, be better informed and find your own solutions.
www.nzfamilies.org.nz/parenting	Hints, tips and links on parenting issues. From dealing with moody teenagers through to keeping the kids busy on a rainy day, you’re bound to find a few gems to assist you in your day-to-day life as a parent.
www.funkybumz.co.nz
www.giftedchildren.org.nz	The New Zealand Association for Gifted Children (NZAGC) exists to promote the needs of gifted kids at national level and support and foster initiatives at local level, which meet those needs.
www.gracelands.org.nz	The Gracelands Group of Services is a regional community based not-for-profit trust that provides a comprehensive vocational service to disabled people. Delivered in a bi-cultural environment it provides maximum support to ensure positive outcomes for its clients.
www.halberg.co.nz	The Halberg Trust honours sporting excellence and links people with a disability to sport and active leisure.
www.hdc.org.nz	To promote and to protect the rights and responsibilities of health and disability consumers
www.head-injury.org.nz	To ensure a quality of life maximising potential, choice and independence for people with acquired head injury, their families and carers.
www.hearing.org.nz	To advance the interest and general welfare of all persons with a hearing loss, their family/whanau and all who support them, to improve their quality of life
www.heartchildren.org.nz	Heart Children New Zealand aims to provide and facilitate the best support and care for children with heart conditions and their families within New Zealand. This site includes information, resources, Heart Children, BNZ Heart House and frequently asked questions.
www.hrs.org.nz/fostercare/	Foster Care Networker is run by Caregiver Allysa Carberry. This site may be of help to anyone who is a Foster Parent or Caregiver of children and young people who, for various reasons, cannot live with their own families/whanau.
www.idfnz.org.nz	IDFNZ is a non-profit organisation dedicated to supporting children, teenagers and adults with diagnosed Primary Immune Deficiency (PID) disorders. A member of the International Patient Organisation for Primary Immune Deficiencies (IPOPI), its focus is on educating the public and health professionals about PID, lobbying, and ongoing medical and scientific research.
www.ihc.org.nz	The website for the IHC
www.imaginebetter.co.nz	Standards Plus helps people and organisations to imagine better. Work alongside disabled people, families and service providers to implement the objectives of the New Zealand Disability Strategy and achieve its vision:
http://imgen.bcm.tmc.edu/IPIF	Incontinentia Pigmenti International Foundation
www.ironz.org.nz	The purpose of this website is to inform people of our organisation and its aims, enable people to contact the support and awareness group, advertise our regular meetings, publish the Frequently Asked Questions and provide links to other websites for more information on Haemochromatosis.
www.keea.org.nz	K.E.E.A, Kiwi Enuresis Encopresis Association
www.kidneykids.org.nz	Kidney Kids of NZ is a parent driven organisation set up to meet the needs of children, and the families of children, who have kidney disorders.
www.kidsfriendlynz.com	Kids Friendly NZ is an online magazine and resource centre for families. It highlights family friendly businesses and places throughout New Zealand.
www.kiwifamilies.co.nz	Here you will find everything you need to know about raising children in New Zealand, from conception until they leave home. This is the most comprehensive parenting website in our country, providing free, independent advice, information and support to parents
www.lbctnz.co.nz	Learning and Behaviour Charitable Trust
www.lefthandnz.com	LeftHand NZ is an online source of information and resources for parents and teachers of left-handed children. Though left handedness is definitely not a disability in itself, many right handed parents struggle when it comes to teaching their left-handed child how to write and how to tie their shoe laces etc. Also, many children who are dyslexic are also left-handed. We have excellent resources to help parents facing these difficulties!
www.leukaemia.org.nz	The Leukaemia & Blood Foundation (LBF) is New Zealand's leading resource of information specifically for patients, family members and friends affected by leukaemia and related blood conditions.
www.macrocephaly-cmtc.com	This Web-site is created for the family and friends of people associated with this condition to try and help them understand with the help from others the complexities of these special children. Due to the rareity of the condition/syndrome the Web-site will be updated each time a new case is received with the relevant/appropriate data.
www.mda.org.nz	On this site, you will find information about the Muscular Dystophy Association of New Zealand (MDA) and some of the more than sixty neuromuscular conditions that the MDA covers. These conditions affect about 5000 New Zealanders.
www.mentalhealth.org.nz	Working to improve the mental health of all people and communities in New Zealand
www.miscarriage.org.nz	Miscarriage Support are a team of volunteers of various ages who have all experienced the loss of our own babies and would like to provide emotional support and information for women and their families during and after miscarriage and subsequent pregnancies.
www.moh.govt.nz	The Ministry of Health aims to ensure that the health and disability system works for all New Zealanders
www.msd.govt.nz	The Ministry of Social Development (MSD) is one of New Zealand's largest government departments. We provide government with advice on strategic social policy, sectoral policy and social research and evaluation in the areas of income support, child, youth and family as well as community. We are also responsible for providing policy advice and support through the Offices for the Community and Voluntary Sector, Senior Citizens and Disability Issues.
www.mylittlesteps.com	Children with developmental and learning disabilities (even severe ones) can learn like other children. Appropriate developmental stimulation in the early years is crucial. In fact it is known that early intervention programs in the early years of a child's life can show dramatic results in helping children develop many important foundation skills. mylittlesteps makes it possible for parents to run their own early intervention program from home. Just click on the link to find out more
www.naturalhealthreview.co.nz	Natural Health Review features the latest important natural health research from many high quality papers published on natural health therapies including ones that focus on pregnancy and fertility
www.nchenz.org.nz	The National Council of Home Educators, New Zealand is an incorporated society set up to encourage, promote, inform and advance the cause of home education in New Zealand at a national level.
www.neonataltrust.co.nz	“Making a difficult start to life easier”- The Neonatal trust, is a charitable trust serving as a support group of parents with premature or sick babies in the Neonatal Unit at Wellington Hospital. Staffed primarily by experienced volunteers. Services include weekly lunches, ward visits, premature clothing, breast pump hire/sales, extensive library, ongoing support for parents, fundraising to provide additional equipment , support to staff and to encourage and support neonatal research.
www.neurological.org.nz	The Neurological Foundation is a registered charity formed in 1971 to reduce the level of suffering and premature death from diseases of the brain and nervous system through research, education and information.
www.nfd.org.nz	National Foundation for the Deaf (NFD) is an organisation concerned with supporting all Deaf and hearing impaired people to communicate, live and achieve
www.ntolerance.co.nz	New Zealand's online specialty food store For people with food intolerances and specialty dietary needs T o achieve excellence in the provision of specialized products, information and outstanding service to sufferers of food intolerances, allergies and medical conditions. Leading the Way to a Healthier Future
www.nzda.org.nz	The New Zealand Dental Association (NZDA) is the professional association for New Zealand dentists. As well as providing services for its members, the NZDA is one body able to speak on behalf of NZ dentistry as a whole. We also provide information and advice to consumers.
www.nzdsa.org.nz	NZ Down Syndrome Association is a family/Whanau driven organisation for people whose lives have been changed by Down Syndrome
www.nzendo.co.nz	The New Zealand Endometriosis Foundation Inc (NZEF) is a registered charitable trust with a unique and special character, formed to provide a resource of information, education, encourage research and work with health professionals to foster and support women, girls and families living with endometriosis.
www.nfaa.org.au	Dedicated to Support, Research and Public Awareness of neurofibromatosis
www.nzfdic.org.nz	The Federation nationally promotes and supports the local provision of generic disability information and referral services that are community integrated, needs driven and focused on achieving the aims of the New Zealand Disability Strategy Document.
www.nzord.org.nz	The New Zealand Organisation for Rare Disorders is a charitable trust that was set up in September 2000, following a conference of over 30 rare disease support groups. They help people affected by rare disorders and their families to find essential information. They provide resources and information for rare disease support groups, monitors rare disease issues and policy matters. They also build partnerships between patients/families, support groups, clinicians, researchers, policy-makers and industry.
www.odi.govt.nz	The Office for Disability Issues is responsible for ensuring government keeps faith with the New Zealand Disability Strategy, by promoting the participation and inclusion of disabled people in our society. On this website, you will find information about the Office, disability in New Zealand, and what the government is doing to promote the well-being and inclusion of disabled people.
www.pacificfoundation.org.nz	Helping children, young people and families to flourish
www.parentscentre.org.nz	Parents Centre New Zealand is a provider of antenatal and parenting education classes. They aim to empower women to prepare for active birthing experiences and advocate on a wide rage of parenting issues.
www.parentcare.org.nz	Parentcare is a support group for families for families who have – or have had- a baby in intensive care or special care. We give support and information to parents while their baby is in hospital and provide ongoing support when they have gone home.
www.parenting.org.nz	Parenting with Confidence provides seminars and other strategic resources and aims to inspire and equip parents with the tools and the belief that they can raise a great family.
www.phoenixinc.org.nz/	Phoenix Inc is a supported employment agency that achieves significant and sustained employment outcomes for people with disability, particularly for people who experience significant barriers to employment. Supported Employment is about assisting people with disabilities to work in the regular workforce and to provide ongoing support for as long as it is required. The focus of supported employment is on those people who have never worked, have interrupted work histories, or who are likely to require ongoing support to retain employment. Phoenix also offers a Transition service to students with disabilities who are in the last year of school.
www.playcentre.org.nz	New Zealand Playcentre Federation Quality Early Childhood Education a cooperative family/whanau experience
www.privacy.org.nz	This site is a full guide to the specific functions of the Commissioner and the practical applications of the Privacy Act in the workplace, media and life of the individual citizen.
www.proed.co.nz	In 1993 three professional women realized that there were a growing number of children experiencing difficulties at school and/or with their behaviour. This was not being addressed by the state system. Since then Pro–Ed has expanded to include assessment and therapy for all age’s groups. The centre now offers a wide array of diagnostic processes and treatment methods catering for both children and adults.
www.pvi.org.nz	Parents of Vision Impaired NZ Inc (PVI) is a non-profit organisation of, by and for parents committed to providing support to the parents of children who have vision impairments
www.publictrust.co.nz	Public Trust is a trustee organisation with a unique mandate to protect the future of New Zealanders. We offer a wide range of legal and financial services to help you. But our role is different from others, like banks and lawyers, who may offer similar services. In fact we even have our own act of parliament to protect your interests
www.pwsa-nz.co.nz	Prader Willi Syndrome Association was formed in 1989 by a group of five concerned parents; our Association is first and foremost a parent support group providing knowledge, advocacy, and support for all families and those who work with PWS.
www.raisinggrandchildren.org.nz	Provides support to Grandparents who are primary caregivers to grandchildren in difficult circumstances and to ensure fair treatment from the legal and child protection services in New Zealand, in order to stablise and normalise the life of the children involved.
www.rarechromo.org	Unique is the UK based Rare Chromosome Disorder Support Group
www.rettsyndrome.org.uk	We are a national organisation giving help, advice and support to parents, carers, siblings and professionals, in fact anybody involved with a child or adult who has Rett syndrome
www.rnzfb.org.nz	The Foundation of the Blind empowers members to adjust to this change in lifestyle and create a new beginning through using new skills, technologies and resources.
www.sfnat.org.nz	Information on the Schizophrenia Fellowship New Zealand Inc. Members of the Fellowship share information and strategies for everything from coping with symptoms to finding financial, medical and other resources.
www.skylight.org.nz	Skylight - supporting children, young people and their families through change, loss and grief - whatever its cause.
www.specialchild.com	“Special Child, an online publication dedicated to parents of children with special needs.” Just some of the information available from this web site. Welcome, Editor’s Note, Success Stories, Horror Stories, Family Issues, Legal Files, Information Avenue, Disorder Zone, Archives, Diagnosis Search, Tips, Bulletin Board
www.speld.org.nz	SPELD New Zealand is committed to helping people, mainly of school age, with specific learning disabilities such as dyslexia. While most children's needs are not regarded as high, some are diagnosed as having aspergers syndrome, dyspraxia, attention deficits, or other disorders that can make life challenging for their parents. We are keen to support Parent to Parent and if you wish to contact the local SPELD association for support or advice, try clicking onto our link.
www.stroke.org.nz	Information on different types of stroke, including relevant services, treatment options, and support groups available in New Zealand.
www.tabs.org.nz	Trauma And Birth Stress. A Charitable Trust that serves as a support group of mothers. Becoming a mother can put women under considerable psychological pressure. Post-natal (or post-partum) depression (PND or PPD) is a well-known and very common experience. Potentially much longer lasting and insidious, however, is Post Traumatic Stress Disorder (PTSD) arising from events before, during, after or throughout the whole of the birth experience.
www.talklink.org.nz	The TalkLink Assistive Communication Service provides specialist assessments for people living in New Zealand who have difficulty communicating in speech or writing
www.teenadders.org.nz	Teenadders offers support and assistance to ADD/ADHD teens and their families.
www.tetrasomy.com	It is a non-profit organisation, it is for families of daughters with Tetrasomy X and Pentasomy X
www.triplep.net	Triple P (Positive Parenting Program) a parenting and family support strategy that aims to prevent severe behavioral, emotional and developmental problems in children by enhancing the knowledge, skills and confidence of parents.
www.withyoueverystepoftheway.com	The site of Cloud 9 Children's Foundation. They provide programs, support and information that help children and teenagers with Asperger's Syndrome cope with life's demands and be better understood.
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