As more and more parents and families seek support on individual conditions and needs, Parent to Parent needs to broaden its network of parents willing to support others that are now seeking support along their journey. Sometimes we are not able to connect a family with a trained Support Parent and we need to search further afield.

We are currently looking for contacts for the following conditions. If you are able to be a support contact for any of these families, please email by clicking on the reference link or call us on the number below:
Phone: 07 853 8491
Toll Free (New Zealand only) 0508 236 236

47XXX SYNDROME: Ref 6737
The mother of an eight year old would like to speak to another parent that has a child with the same condition.

ALPHQ-DYSTROGLYCANOPATHY POMTI-2: Ref 8162
A mother of a six year old daughter would like to speak to another parent that has a child with this condition.

ANAPHYLAXIS: Ref 5581
The mother of a nine year old boy would like to speak to another parent whose child has completed the
desensitisation programme.

BERNARD SOULIER SYNDROME: Ref 9042
The parent of a sixteen month old boy would like to speak with another parent would like to speak with another
parnet who has a child with this condition.

BLADDER EXSTROPHY: Ref 10490
The mother of a four year old would like to speak with another parent who has some experience with this condition.

CHRONIC RECURRANT MULTIFOCAL OSTEOMYLITIS: Ref 7149
A Mother of a 10 year old girl would like to speak to another parent who has a child with the same condition.

EPISPADIAS SPECTRUM DISORDER: Ref 7548
The mother of a nine year old boy would like to speak to another parent with a child with the same condition. 

GENITOPATELLAR SYNDROME: Ref 6873
A parent of a one year old boy would like to speak to another parent that has a child with the same condition.

HETEROTAXY SYNDROME: Ref 7953
This parent would like to speak to another parent who has a child with this rare condition.

HYPEREKPLEXIA (also known as Startle Disease): Ref 2643
Mother and daughter looking for a connection with someone else who has this condition.  

ILEOSTOMY: Ref 6117
The parent of a 6 year old would like to speak to another parent that has a child with the same condition.

LIPOFIBROMATOSIS: Ref 7321
The mother of a young baby would like to speak to another parent that has a child with the same condition.

LONG CHAIN ACYL-COA DEHYDROGENASE DEFICIENCY: Ref 10515
The mother of a seven month baby would like to speak with another parent who has a child with the same condition.