Can You Help?

As more and more parents and families seek support on individual conditions and needs, Parent to Parent needs to broaden its network of parents willing to support others that are now seeking support along their journey. Sometimes we are not able to connect a family with a trained Support Parent and we need to search further afield.

We are currently looking for contacts for the following conditions. If you are able to be a support contact for any of these families, please email by clicking on the reference link or call us on the number below:
Phone: 07 853 8491
Toll Free (New Zealand only) 0508 236 236

ACUTE DISSEMINATED ENCEPHALOMYELITIS: Ref 12302
The mother of a five year old daughter would like to speak to another parent who has a child with this condition.

ALBINISM: Ref 11243
The mother of a teenage boy would like to speak to a parent of a child with albinism who has been through, or is going through teenage years.

ALLAN HERNDON DUDLEY SYNDROME or (MCT8): Ref 12155

The mother of a six year old boy would like to have contact with another family who have a child diagnosed with the same rare condition. 

ALPHQ-DYSTROGLYCANOPATHY POMTI-2: Ref 8162
The mother of a seven year old daughter would like to speak to another parent that has a child with this condition.

BERNARD SOULIER SYNDROME: Ref 9042
The parent of a sixteen month old boy would like to speak with another parent would like to speak with another
parent who has a child with this condition.

BLADDER EXSTROPHY: Ref 10490
The mother of a four year old would like to speak with another parent who has some experience with this condition.

BLUE RUBBER BLEB NEVUS: Ref 10589
The mother of a young baby would like to speak with another parent who has child with the same condition.

BRAIN TUMOUR - (Atypical Teratoid Rhabdoid Tumour): Ref 12783

The family of a young boy would like to have contact with other families who have a child/family member diagnosed with this specific brain tumour.

BULLOUS PEMPHIGOID: Ref 11154
The mother of a young baby would love the opportunity to speak to another family who has a child with this same condition.

CAMPTODACTYLY: Ref 12300
The mother of a 15 year old daughter would love to have contact with another parent who has a family member with Camptodactyly.

CHROMOSOME DELETION 6q24.1 and/or Xp22.3: Ref 10666
The mother of a two year old daughter would like to speak to another parent who has a child with either one or both of these chromosome deletions.

CITRULLINAEMIA: Ref 12722 (Type 1) The mother of a young child would like contact with another family who also have a child diagnosed with this very rare condition.

CONGENITAL VENOUS MALFORMATION: Ref 10913  (Affecting the leg)   
The mother of a 10 year old daughter would like to have contact with another parent of child with the same or similar condition and has to undergo regular drainage procedures.

DOWN SYNDROME, TRACHEO-OESOPHAGEAL FISTULA, OESOPHAGEAL ATRESIA: Ref 11228
The mother of a six year old boy would love to have contact with another family who have a child with all three of these conditions.

GLYCEROL KINASE DEFICIENCY: Ref 10637
The mother of a young boy would like to speak to another parent who has a child with the same condition.

HYPEREKPLEXIA (also known as Startle Disease): Ref 2643
Mother and daughter looking for a connection with someone else who has this condition.

HYPERHIDROSIS: Ref 12673

The mother of a child who has severe Hyperhidrosis would like the opportunity to speak to another family who have a child diagnosed with this condition.

LANDAU-KLEFFNER SYNDROME: Ref 11634
The mother of a young baby would like to speak to another parent that has a child with the same condition.

MCCUNE ALBRIGHT SYNDROME: Ref 2923
The mother of a young child would love to speak to another family who have a child with this same condition.

MULTIMINICORE DISEASE: Ref 11281

The mother of a five year old boy would love to speak to another parent who has a child with this same rare condition.

NARCOLEPSY: Ref 12419

The mother of a 16 year old daughter recently diagnosed with the condition would like to have contact with another family who has a teenager or slightly older child with this condition.

NASAL DERMOID CYSTS: Ref 10666
The mother of a two year old daughter would like to have contact with another family whose child has Nasal Dermoid Cysts and in particular with an intracranial tract.

OPSOCLONUS-MYOCLONUS: Ref 7683 Neuroblastoma associated.
The mother of a three year old daughter would like to speak with another parent who has a child with this condition.

PAGETS DISEASE: Ref 11216
The mother of a young child would like to speak to another parent that has a child with this same condition.  

PARTIAL TRISOMY 15q & TRISOMY 8: Ref 9557
A mother of a seven month only baby would like to speak with another parent who has a child with this condition.

PHACES SYNDROME: Ref 12126
The mother of a young child would love the opportunity to speak to another parent who has a child with this same condition.

PUSTULA PSORIASIS: Ref 11088
The mother of a two year old daughter would love to speak to another parent who has a child with this rare form of Psoriasis. 

RHEUMATIC FEVER: Ref 11284 

The mother of a teenage son would like to have contact with another parent who has a child with this condition.  

TRICHOTILLAMANIA: Ref 12425

The mother of a teenage daughter would love to have contact with another family who has a child (preferably teenager) with this condition.

TETRASOMY 18p: Ref 11631
The mother of a teenage son would like to have contact with another parent who has a child with this condition.